Recipes

Lived Experiences of Sapropterin

An NSPKU presentation on a forthcoming PhD “to collect information about the rollout and response testing for sapropterin treatment in England since its availability on the NHS for all ages in 2021”.

PKU Raisin Scones

Tasty, fluffy, protein-free raisin scone recipe - with pictures and baking tips for people on Low Protein diets like PKU, Phenylketonuria.

Cucumber and avocado smoothie

Something a bit different for hot weather and PKU meals. I came across this as a recipe for a ‘no-cook’ soup but in both temperature and texture it is best described as a smoothie. 2g protein, Low Protein

Fennel and orange salad

Salads come to the fore in hot weather, helped along by the often overlooked fennel. This salad is 1g protien per serve, or can be made protein-free. You need to start this salad one hour before serving. Serves two as a main or four people as a side salad.

Fennel and 'cheese' salad

PKU and heatwave friendly 'no-cook' recipe fennel and 'cheese salad'. Can be made phe-free, low-protein, or add protein as needed.

Protein-free Carrot Cake

A protein-free carrot cake recipe with picutures. It is great for PKU celebrations or the occasional treat. (0.45g of protein in the entire cake)

PKU recipe for breadmakers

A reliable recipe for making PKU bread in a breadmaker. I've used this recipe for years, and it consistently makes a soft, white loaf. Plus, how to avoid that hard ring of flour and using psyllium husks.

PKU ‘Fish’ fingers

When I asked my friends for their recommendations for my first ‘fish’ finger supper, the reply was ‘I haven’t had those since I was 10.’ There is no reason for fish fingers to be a child only meal, we face too many food restrictions for that nonsense.

Four quick ‘school-night’ dinners

Quick, easy dinners to satisfy the taste buds and the PKU diet. Three of the recipes are Phe-free. The last has 2.5g Phe per adult portion with option to add more if needed.

PKU and non-PKU lasagne in the same dish.

The need to double up on meals is a common problem for people with PKU. Hence a 2-in-1 lasagne. A single dish with one half PKU lasagne and the other non-PKU lasagne.