Low Protein

Campaign update at NSPKU2022.

Liz Twist MP spoke to the conference in her role as Chair of the All Party Parliamentary Group (APPG) for PKU. She began by extolling the difference which Sapropterin makes for those who respond, but she also acknowledged the need to work for those who do not respond.

Review: five Sphere flavours

Vitaflo Sphere have two new, and frankly delicious, flavours in their supplement range. I tried all five flavours in one day and took notes for you.

New book: Living with PKU

No one’s PKU is quite the same, yet we can support each other. I don’t pretend to have all the answers, but this book contains what I know from forty years of Living With PKU

PKU and heatwave friendly recipes

For five days the temperatures are expected to hover around 30 celcius so it is a good time to revisit my handy ‘no-cook’ recipes. There are three on this page, ranging from phe-free, to 2phe per portion.

What is GMP?

GMP is a cheese-derived protein which has exciting implications for the treatment of PKU (tasty supplements!). Find out more on PigPen.page

New Chocolate Sphere

What is a GMP substitute? If you haven’t heard of GMP substitutes before, here is a quick primer. Vitaflo Sphere background The Vitaflo Sphere has been available in the UK for more than 18 months and comes in sachets of either 15g or 20g protein equivalents.