Brain Injury Living with Mild Brain Injury, a memoir Through this book, the reader gains an appreciation of the confusion experienced by many brain injury survivors, which sheds light on why some may develop unusual behaviour or mental health issues, and how such issues can be alleviated.
PKU A day in the life of PKU A dietician’s focus on PKU may be a purely objective one... They only see us once every few months so how do you show them the daily perspective? How do you explain living with PKU to someone who approaches it from a medical or academic perspective?
Writing NaNoWriMo and daily habits Almost any piece of advice on being a writer will emphasise the need to develop a daily writing habit. This is an allocated time of day when you sit down and write for a set word count or a certain length of time. Famous authors credit a large part of their success to this habit.
PKU 2020 - halfway through. Our usual pace of life has gone which means I often brood on how little I managed to do this year. To help drag myself out of these moods, I drew up a list of five things I’ve achieved. It provides solid evidence and reassurance that I have progressed, despite the chaos.
PKU Dark Chocolate & Ginger Hot Cross Bun loaf What I really wanted was a Hot Cross Bun loaf which I could slice and toast like normal bread. And I have a bread maker
Brain Injury Change, ambiguous loss and spoons Change is a constant right now. We are bombarded with new concepts and rules to understand which can then change at a moments notice.
Writing Now it’s summer I saw a friend on Tuesday. I hadn’t seen her since January. We judged the breeze. Where to sit so one doesn’t breathe on the other?
PKU PKU in a time of Covid This is a worrying time so I will start by highlighting the NSPKU Video on Coronavirus and the statement on their website.
Conference NSPKU 2020 This report covers the Saturday morning session which includes the latest research and legal wrangling on PKU.
PKU Fad Diets & PKU Being able to chose what you eat, or what you avoid, is not an option for anyone on a medically restricted diet.
PKU Blogging Anxiety I have never said that the PKU diet is easy but I do try to avoid negative thinking. It is not easy to be positive about having an inherited metabolic disorder...I don't leap out of bed in the morning and shout “Hurray! I have PKU!”
PKU Eating out with PKU Every now and then there is a request on social media for help when eating out with PKU. Here are some tips and recommendations for eating out in the UK.
Brain Injury Rugby rules, football failures and concussions in sport. The last few years have seen numerous studies showing the damage which contact sports can cause to the brain. This has moved the argument on...to how to make the sports safer...But as fast as these rules are introduced, loopholes are found.
PKU What is PAL? Or PEG-PAL or Pegvaliase or Palynziq...? The four terms refer to different aspects of a single method of treatment for PKU. This is an enzyme replacement therapy which is usually injected. Bear with me while I try untangle it all.
Brain Injury ABI & Gardening There is growing evidence which shows the benefits gardening has on our mental health. Five years ago, a doctor and scientist argued that gardening should be available on the NHS.
PKU PKU friendly recipes to try in October Where the heck did September go? Admittedly I spent most of the month pretending it was still summer. The weather played ball early on, but now the season for soups and oven dishes is now upon us.
PKU Fitness, BMI & PKU BMI is not a personalised reminder of your chocolate and/or beer binges. It lets you know roughly how you are doing.
PKU PKU and heatwave friendly recipes For five days the temperatures are expected to hover around 30 celcius so it is a good time to revisit my handy ‘no-cook’ recipes. There are three on this page, ranging from phe-free, to 2phe per portion.
Brain Injury Pausing the anxiety treadmill. If there ever was a time to be kind to yourself, this is it. Take a breath and realise that one mistake is not a failure. We are usually nicer to everyone else than we are to ourselves.
Brain Injury Brain Injury and exercise The effects of exercise on those recovering from a brain injury can be helpful and encouraging for both body and mind.
Brain Injury Concussion substitutes now allowed in international cricket. In a landmark rule change, cricket teams will be able to replace concussed players during international games. This is exciting news for brain injury awareness, brain injury prevention and for sports fans.
Brain Injury Heatwaves & Acquired Brain Injury (ABI). Some people with ABI will be fine, but for many temperature extremes can make it harder to mange the symptoms and effects of the injury. Headway UK reports that “A brain injury can sometimes cause problems with temperature regulation making it harder for survivors to control their body temperature.”
PKU Tea & Scones My lack of baking prowess is legendary, as is my love for a freshly baked treat.So a few months back I decided to knuckle down and master at least one simple recipe. Every Saturday for a month the kitchen rang to the sound of muttered curses softened by a dusting of flour. But I got there!
PKU Webinar - Healthy eating on a low protein diet Louise kicks things off by saying that “in theory a Low Protein (LP) diet sounds very healthy as it should include a lot of vegetables and fruit.” But her research has found that it can be difficult to eat healthily and watch your weight on a LP diet. Fortunately, she has a few answers.
Conference UKABIF at Parliament Two weeks after Chris Bryant MP led a debate in Parliament on Acquired Brain Injury (ABI) he co-hosted a Lobbying Reception in Speakers House. The aim of the event was to raise awareness of ABI and of the need to improve neuro-rehabilitation facilities.
