Pauline O'Connor

Pauline O'Connor

Polly is the editor of PigPen.Page. She set up this website to write about her personal experiences with brain injuries, PKU and to document her forays into the world of writing.


Exciting new research and clinical trials in the UK, which you can support for PKU Day 2024. June 28 is a chance for this rare disease community to raise awareness of the inherited metabolic condition, Phenylketonuria (PKU).

Review of the EU Guidelines on PKU

The inform policy changes and establish the best treatment practices in places where those are still being developed, and to support those in areas where treatment falls short.

Brain Injury News, June 2024

- A brain injury manifesto for the UK election - Two research opportunities - Share your views on medicine shortages. - And tell the government what you think of PIP

PKU News, June 2024

Update on sepiapterin and other groundbreaking treatments. A primer on the PKU injection treatment PegPal, AKA Pegvaliase or Palynziq. A new way to distribute treatments for Rare Disease?

PKU future treatment update

The NSPKU conference held from 17-19 May 2024 included an update on possible new treatments for PKU. These are my notes from the sessions on sepiapterin, mRNA, gene therapy, solute carrier 6, and options for PegPal.

Brain injury news, May 2024

This research study is looking at ways to improve mood after brain injury by taking part in rewarding activities

PKU news May 2024

Looking for a massive online resource with recipe & product ideas, managing PKU and fitness, and honesty about living with PKU? Check out Tristan’s blog...

Kickstarting The Red Hat Stories

This short story anthology is my first fiction book, and the choice to try a Kickstarter was strategic. The Kickstarter campaign will run until May the 4th (Star Wars Day!)

Speaking at the WI

I encourage fellow authors to explore speaking at local groups. They are a powerful platform not just for income, but for raising awareness and connecting with communities.

Welcome, start here

Pauline O'Connor, author & advocate on PKU (phenylketonuria), brain injury & mental health. Books: Living With PKU & Living With Mild Brain Injury. Subscribe to the monthly newsletter.
The Alliance of Independent Authors - Author Member