Brain injury news, May 2024
This research study is looking at ways to improve mood after brain injury by taking part in rewarding activities
Pauline O'Connor
Polly is the editor of PigPen.Page. She set up this website to write about her personal experiences with brain injuries, PKU and to document her forays into the world of writing.
PKU news May 2024
Looking for a massive online resource with recipe & product ideas, managing PKU and fitness, and honesty about living with PKU? Check out Tristan’s blog...
Kickstarting The Red Hat Stories
This short story anthology is my first fiction book, and the choice to try a Kickstarter was strategic. The Kickstarter campaign will run until May the 4th (Star Wars Day!)
Speaking at the WI
I encourage fellow authors to explore speaking at local groups. They are a powerful platform not just for income, but for raising awareness and connecting with communities.
Welcome, start here
Pauline O'Connor, author & advocate on PKU (phenylketonuria), brain injury & mental health.
Books: Living With PKU & Living With Mild Brain Injury.
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Neuro Navigators
Neuro Navigators help patients to understand the process of neurological rehabilitation. How to find them in London.
Starting the Conversation
We wanted a space where adults with PKU felt able to hold an open discussion about managing PKU, and to collect data about our concerns in real time.
Emergency travel with PKU
People with PKU need to prepare for the unexpected, here are my tips for travel. What are yours?
What is LNAA?
Large Neutral Amino Acid (LNAA) treatment for PKU
This is a supplementary therapy for PKU which is in use in some European countries. It is particularly aimed at those with mild PKU
Tips for blood spots
TW: discusses blood and needles.
Not all lancets are equal! While no blood collection method is fun or painless, the type of lancet used does have a significant effect on pain and healing.