When the baby is not OK
A memoir of Motherhood and PKU.
“When the Baby Is Not OK: Hopes & Genes” by Jennifer J. Brown
J.J. Brown is a US-based public health advocate, author, and a mother of two daughters with PKU. A scientist and geneticist she worked with the first female Nobel Prize winner who did not share the prize. Genetics worked in mysterious ways to bring Jennifer a very personal stake in the world of rare disease and PKU. She discusses this win her new release, now available in ebook, paperback, and hardback.
“What if the baby is not OK?”
Out of nearly four million who get newborn screening each year, about 12,000 babies are diagnosed with a "rare disease" in the US alone. Jennifer J. Brown's daughters were two of them. It was in their genes.
As a student who thought about being a scientist first, and becoming a mother second, the news changed her life forever. This intimate memoir of pregnancy, childbirth and raising special kids revises the story of what to expect with hope. By turns heartbreaking and horrifying, educational and inspiring, here is a raw and remarkable journey of triumph and acceptance.
“A powerful and unflinching memoir interwoven with a wide-ranging social history, offering a compelling examination of motherhood, medical care, and genetic heritage through the lens of PKU.”
Reviews for “When the baby is not OK”
I was grateful to receive an advanced copy of this book, and wow. It is a powerful and unflinching memoir interwoven with a wide-ranging social history, offering a compelling examination of motherhood, medical care, and genetic heritage through the lens of PKU.
“Advocacy begins and ends with fighting for those you love. I believe this book will become a healing presence for anyone who reads it.”
Kevin Alexander, Vice President of Louisiana Metabolic Disorders Coalition, Host of Never Give Up: A Rare Disease Podcast
“A truly fascinating insight into genetic disorder, phenylketonuria (PKU), written by an author who knows how to put over the ‘complex’ in an accessible, interesting and compelling way. Highly recommended!”
The Wishing Shelf
About JJ Brown
J.J. Brown is a public health advocate and author of mystery, speculative fiction, noir fiction and poetry books infused with a passion for nature, science, and family. Her fiction books address current medical, mental health and environmental issues. Her nonfiction works in health and medical education are published as Jennifer J. Brown, PhD in professional journals. She is a mentor for caretakers and people living with phenylketonuria, PKU, at the National PKU Alliance, NPKUA. When not writing, J.J. Brown enjoys time with her daughters, her companion rabbits Belinda and Maxi, and parakeets Sweety and Penelope. Originally from the Catskill Mountain region of New York, J.J. Brown lives in New York City.
Find “When the baby is not OK”
US Hardcover: https://www.amazon.com/dp/B0DTF4B5DB
UK Hardcover: https://www.amazon.co.uk/dp/B0DTF4B5DB
Ebooks
UK Kindle: https://www.amazon.co.uk/When-Baby-Not-OK-Hopes-ebook/dp/B0DT7MZ7YL
UK Kobo: https://www.kobo.com/gb/en/ebook/when-the-baby-is-not-ok-hopes-genes
US Kindle: https://www.amazon.com/dp/B0DT7MZ7YL
US Barnes & Noble: https://www.barnesandnoble.com/w/when-the-baby-is-not-ok-jennifer-j-brown/1146869011
US Kobo: https://www.kobo.com/us/en/ebook/when-the-baby-is-not-ok-hopes-genes
CA Kindle: https://www.amazon.ca/When-Baby-Not-OK-Hopes-ebook/dp/B0DT7MZ7YL/
CA Kobo: https://www.kobo.com/ca/en/ebook/when-the-baby-is-not-ok-hopes-genes