PKU Gyms and PKU Like with everything, going to the gym should be fun and rewarding... it just takes a bit of time and care - like anything with PKU!
PKU Moving with PKU: Get moving. In his first blog for PigPen.Page, Soheb discussed the benefits and potential pitfalls facing a PKU-er moving out of home for the first time. Part two looks at practicalities of moving and how to prepare.
PKU Moving with PKU: Get ready Moving out can be pretty intimidating in itself, but when you have PKU, it can feel incredibly intimidating...If you are consideing moving out into a new place, there are a few things you will need to think about carefully.
PKU A day in the life of PKU A dietician’s focus on PKU may be a purely objective one... They only see us once every few months so how do you show them the daily perspective? How do you explain living with PKU to someone who approaches it from a medical or academic perspective?
PKU Dark Chocolate & Ginger Hot Cross Bun loaf What I really wanted was a Hot Cross Bun loaf which I could slice and toast like normal bread. And I have a bread maker
Brain Injury Change, ambiguous loss and spoons Change is a constant right now. We are bombarded with new concepts and rules to understand which can then change at a moments notice.
PKU PKU in a time of Covid This is a worrying time so I will start by highlighting the NSPKU Video on Coronavirus and the statement on their website.
Conferences NSPKU 2020 This report covers the Saturday morning session which includes the latest research and legal wrangling on PKU.
PKU Fad Diets & PKU Being able to chose what you eat, or what you avoid, is not an option for anyone on a medically restricted diet.
PKU Blogging Anxiety I have never said that the PKU diet is easy but I do try to avoid negative thinking. It is not easy to be positive about having an inherited metabolic disorder...I don't leap out of bed in the morning and shout “Hurray! I have PKU!”
PKU Eating out with PKU Every now and then there is a request on social media for help when eating out with PKU. Here are some tips and recommendations for eating out in the UK.
PKU What is PAL? Or PEG-PAL or Pegvaliase or Palynziq...? The four terms refer to different aspects of a single method of treatment for PKU. This is an enzyme replacement therapy which is usually injected. Bear with me while I try untangle it all.
PKU PKU friendly recipes to try in October Where the heck did September go? Admittedly I spent most of the month pretending it was still summer. The weather played ball early on, but now the season for soups and oven dishes is now upon us.
PKU Fitness, BMI & PKU BMI is not a personalised reminder of your chocolate and/or beer binges. It lets you know roughly how you are doing.
PKU PKU and heatwave friendly recipes For five days the temperatures are expected to hover around 30 celcius so it is a good time to revisit my handy ‘no-cook’ recipes. There are three on this page, ranging from phe-free, to 2phe per portion.
Brain Injury Pausing the anxiety treadmill. If there ever was a time to be kind to yourself, this is it. Take a breath and realise that one mistake is not a failure. We are usually nicer to everyone else than we are to ourselves.
PKU Tea & Scones My lack of baking prowess is legendary, as is my love for a freshly baked treat.So a few months back I decided to knuckle down and master at least one simple recipe. Every Saturday for a month the kitchen rang to the sound of muttered curses softened by a dusting of flour. But I got there!
PKU Webinar - Healthy eating on a low protein diet Louise kicks things off by saying that “in theory a Low Protein (LP) diet sounds very healthy as it should include a lot of vegetables and fruit.” But her research has found that it can be difficult to eat healthily and watch your weight on a LP diet. Fortunately, she has a few answers.
PKU The Online PKU Community This is PKU Awareness month and International PKU day is on the 28th of June. So this is the perfect time to get a bit more involved with PKU online.
PKU PKU Awareness Month Challenge Telling someone that you have PKU really can make it easier to stick to the diet; as well as raising awareness of the condition during PKU Awareness month.
About Polly O'Connor What is PKU? “I have inherited a mutated gene meaning my body cannot produce a particular enzyme which breaks down an essential amino acid. ...Ultimately too much protein in my food can lead to brain damage.”
PKU New Waitrose Vegan Range It seems there is a new Vegan range at Waitrose and I picked up two of them for a weekend taste-a-thon.
PKU What is GMP? GMP sounds pretty damned good, for most people it’s enough that a new supplement tastes better. But it’s looking like there might be even more benefits to using GMP over a synthesised amino acid supplement.
PKU Chocolate Sphere trial: results! With the new chocolate Sphere flavour out from Vitaflo I decided to see if I could fit this into my diet - see here for the first installment. How did I do it and what happened?
PKU New Chocolate Sphere What is a GMP substitute? If you haven’t heard of GMP substitutes before, here is a quick primer. Vitaflo Sphere background The Vitaflo Sphere has been available in the UK for more than 18 months and comes in sachets of either 15g or 20g protein equivalents.
