TW: discusses blood and needles. Not all lancets are equal! While no blood collection method is fun or painless, the type of lancet used does have a significant effect on pain and healing.
About PKU (Phenylketonuria) and low protein diets
The blood spots from my first week on the pills seemed to show a drop. I admit that I began to get excited. That was a mistake, and one I’d encourage others to avoid.
Maintaining this level of control would be a tough ask. But I discovered that, when I thought I had been strict on my diet in the past, I really hadn’t.
A year after I went in for blood tests to determine if my PKU would respond, I finally took my first dose of sapropterin.
Living with PKU hit NUMBER 1 in the Genetics hottest releases list. It also made the top 6 bestsellers list, up there with Richard Dawkins and Adam Rutherford.
A simple run down of the genetics of PKU, and how that relates to sapropterin testing. I’m going for the “Explain like I’m five” version here!
Tasty, fluffy, protein-free raisin scone recipe - with pictures and baking tips for people on Low Protein diets like PKU, Phenylketonuria.
Something a bit different for hot weather and PKU meals. I came across this as a recipe for a ‘no-cook’ soup but in both temperature and texture it is best described as a smoothie. 2g protein, Low Protein
Salads come to the fore in hot weather, helped along by the often overlooked fennel. This salad is 1g protien per serve, or can be made protein-free. You need to start this salad one hour before serving. Serves two as a main or four people as a side salad.
PKU and heatwave friendly 'no-cook' recipe fennel and 'cheese salad'. Can be made phe-free, low-protein, or add protein as needed.