News

Starting the Conversation

We wanted a space where adults with PKU felt able to hold an open discussion about managing PKU, and to collect data about our concerns in real time.

Newsletter 8 - January

How a new perspective might help you in 2023. Another new PKU treatment(!), & helping with PKU research. Plus, 5 ways to wellbeing through kindness. (Jan 2023 newsletter)

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New book: Living with PKU

No one’s PKU is quite the same, yet we can support each other. I don’t pretend to have all the answers, but this book contains what I know from forty years of Living With PKU

First income as an author

This income wasn’t from directly from book sales nor from my publisher. Rather it came from secondary uses of my work.

New Year, New Book

It is unnerving to send a story out into the world, but I’m grateful to see that is has been well received: “Incredibly vivid... this book will be of great benefit to professionals, survivors and their families alike.”