No one’s PKU is quite the same, yet we can support each other. I don’t pretend to have all the answers, but this book contains what I know from forty years of Living With PKU
It is unnerving to send a story out into the world, but I’m grateful to see that is has been well received:
“Incredibly vivid... this book will be of great benefit to professionals, survivors and their families alike.”
After the diagnosis of concussion and post-concussion, I received more bad news. There had been a bleed in my brain, which led to horrible cycles of migraines causing severe dizziness, & yet more migraines.