Nothing on this website is intended to replace medical advice or treatment.

It is important that you consult your health care practitioner before making any  treatment, medication  or lifestyle changes.

My aim is to assist those living with a rare disease or brain injury and to disseminate research & developments. Where my articles go beyond my personal experience or that of my interviewees I have based as many of the assertions, facts and figures on approved scientific research which you will find referenced through out my articles.

If you feel the references used are out of date or incomplete or that I have come to the wrong conclusions please contact me with your alternate references and details.