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Office 100738, PO Box 6945, London, W1A 6US, U.K.

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Each email includes updates on:

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Emails arrive monthly, or with exciting news. I will not spam, and I do not give anyone else your email address.


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Disclaimer & Policies

Nothing on this website is intended to replace medical advice or treatment.

It is important that you consult your health care practitioner before making any treatment, medication, or lifestyle changes.

My aim is to assist those living with a rare disease or brain injury and to disseminate research & developments. Where my articles go beyond my personal experience or that of my interviewees I have based as many of the assertions, facts and figures on approved scientific research which you will find referenced through out my articles.

If you feel the references used are out of date or incomplete or that I have come to the wrong conclusions please contact me with your alternate references and details.

All content on this website is copyright Pauline O'Connor 2019-2024. Nothing may be reproduced without my express permisison in writing beforehand.

PigPen Privacy Policy

Our contact details
Name: Pauline O’Connor
E-mail: Pauline(at)

(Privacy Policy updated on 26 April 2022)

The type of personal information we collect
We currently collect and process the following information:
- Personal identifiers, contacts and characteristics (for example, name and contact details)
- Derivative data (like IP addresses and browser types) on visits to our website are collected via Google Analytics.

How we get the personal information and why we have it
Most of the personal information we process is provided to us directly by you when signing up to the email newsletter
We use the information that you have given us in order to contact you via email.
Under the General Data Protection Regulation (GDPR), the lawful bases we rely on for processing this information is your consent. You are able to remove your consent at any time. You can do this by contacting Pauline at the address above.

How we store your personal information
Your information is securely stored. We keep your name and contact email address for the purposes of contacting you via email only. If you wish you unsubscribe, please contact Pauline. We will then dispose safely dispose of your information by deleting it from our servers within 90 days.

Your data protection rights: Under data protection law, you have rights including:
- Your right of access. You have the right to ask us for copies of your personal information.

-Your right to rectification. You have the right to ask us to rectify personal information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete.

- Your right to erasure. You have the right to ask us to erase your personal information in certain circumstances.

- Your right to restriction of processing. You have the right to ask us to restrict the processing of your personal information in certain circumstances.

- Your right to object to processing. You have the the right to object to the processing of your personal information in certain circumstances.

You are not required to pay any charge for exercising your rights. If you make a request, we have one month to respond to you. Please contact us at Pauline(at) if you wish to make a request.

How to complain
If you have any concerns about our use of your personal information, you can make a complaint to us at Pauline(at) You can also complain to the ICO if you are unhappy with how we have used your data.
The ICO’s address:
Information Commissioner’s Office
Wycliffe House
Water Lane

Helpline number: 0303 123 1113
ICO website:

Effective Date: 26-Apr-2022
Last Updated: 26-Apr-2022
What are cookies? This Cookie Policy explains what cookies are and how we use them, the types of cookies we use i.e, the information we collect using cookies and how that information is used, and how to manage the cookie settings.
Cookies are small text files that are used to store small pieces of information. They are stored on your device when the website is loaded on your browser. These cookies help us make the website function properly, make it more secure, provide better user experience, and understand how the website performs and to analyze what works and where it needs improvement.
How do we use cookies? As most of the online services, our website uses first-party and third-party cookies for several purposes. First-party cookies are mostly necessary for the website to function the right way, and they do not collect any of your personally identifiable data.
The third-party cookies used on our website are mainly for understanding how the website performs, how you interact with our website, keeping our services secure, providing advertisements that are relevant to you, and all in all providing you with a better and improved user experience and help speed up your future interactions with our website.
Types of Cookies we use Manage cookie preferences Cookie Settings You can change your cookie preferences any time by clicking the above button. This will let you revisit the cookie consent banner and change your preferences or withdraw your consent right away.
In addition to this, different browsers provide different methods to block and delete cookies used by websites. You can change the settings of your browser to block/delete the cookies. Listed below are the links to the support documents on how to manage and delete cookies from the major web browsers.
Internet Explorer:
If you are using any other web browser, please visit your browser’s official support documents.
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