PKU Resolution redux If you have struggled with the changes, remember that by simply paying attention to what you are eating you are already making a difference. The habits and effects will come.
Brain Injury New Year, New Book It is unnerving to send a story out into the world, but I’m grateful to see that is has been well received: “Incredibly vivid... this book will be of great benefit to professionals, survivors and their families alike.”
Brain Injury Art and Music Therapy in a Pandemic The use of music as a reabilitation tool alongside other therapies had never occurred to me. Elizabeth Nightingale, the Neurological Services lead at Chiltern Neuro and Medical services provided an introduction to this fascinating field.
PKU PKU at Christmas This blog post has a plethora of links and I hope that some of them inspire you to a more PKU friendly Christmas.
Brain Injury Living with Mild Brain Injury, a memoir “Incredibly vivid... this book will be of great benefit to professionals, survivors and their families alike.” Dr Neil Parrett. Consultant Clinical Psychologist (Neurorehabilitation)
Brain Injury Rugby concussions and Cricket rigour We must continue to raise awareness of brain injury so that participants in all sports can make an informed decision about their safety.
PKU Gyms and PKU Like with everything, going to the gym should be fun and rewarding... it just takes a bit of time and care - like anything with PKU!
Brain Injury Brain injuries and lack of insight A lack of self-awareness, or a lack of insight, is fairly common in a brain injury survivor. I’ve suffered form it before and have written about it in my book, but how does one spot it in themselves?
PKU Moving with PKU: Get moving. In his first blog for PigPen.Page, Soheb discussed the benefits and potential pitfalls facing a PKU-er moving out of home for the first time. Part two looks at practicalities of moving and how to prepare.
PKU Moving with PKU: Get ready Moving out can be pretty intimidating in itself, but when you have PKU, it can feel incredibly intimidating...If you are consideing moving out into a new place, there are a few things you will need to think about carefully.
Brain Injury Brain injuries in women It has taken hundreds of years to discover that a common injury affects half of the population differently.
Brain Injury Support for Brain Injury during the pandemic The pandemic is far from over, but already there are positives to be found in understanding and treating Acquired Brain Injury.
Brain Injury Coronavirus, rule changes and ABI The pivot to a Covid response has caused considerable disruption to an already strained service. There have been reports that the NHS will not fully recover for four years.
PKU A day in the life of PKU A dietician’s focus on PKU may be a purely objective one... They only see us once every few months so how do you show them the daily perspective? How do you explain living with PKU to someone who approaches it from a medical or academic perspective?
Writing NaNoWriMo and daily habits Almost any piece of advice on being a writer will emphasise the need to develop a daily writing habit. This is an allocated time of day when you sit down and write for a set word count or a certain length of time. Famous authors credit a large part of their success to this habit.
Mental Health 2020 - halfway through. Our usual pace of life has gone which means I often brood on how little I managed to do this year. To help drag myself out of these moods, I drew up a list of five things I’ve achieved. It provides solid evidence and reassurance that I have progressed, despite the chaos.
PKU Dark Chocolate & Ginger Hot Cross Bun loaf What I really wanted was a Hot Cross Bun loaf which I could slice and toast like normal bread. And I have a bread maker
Brain Injury Change, ambiguous loss and spoons Change is a constant right now. We are bombarded with new concepts and rules to understand which can then change at a moments notice.
Writing Now it’s summer I saw a friend on Tuesday. I hadn’t seen her since January. We judged the breeze. Where to sit so one doesn’t breathe on the other?
PKU PKU in a time of Covid This is a worrying time so I will start by highlighting the NSPKU Video on Coronavirus and the statement on their website.
Conferences NSPKU 2020 This report covers the Saturday morning session which includes the latest research and legal wrangling on PKU.
PKU Fad Diets & PKU Being able to chose what you eat, or what you avoid, is not an option for anyone on a medically restricted diet.
PKU Blogging Anxiety I have never said that the PKU diet is easy but I do try to avoid negative thinking. It is not easy to be positive about having an inherited metabolic disorder...I don't leap out of bed in the morning and shout “Hurray! I have PKU!”
PKU Eating out with PKU Every now and then there is a request on social media for help when eating out with PKU. Here are some tips and recommendations for eating out in the UK.
Brain Injury Rugby rules, football failures and concussions in sport. The last few years have seen numerous studies showing the damage which contact sports can cause to the brain. This has moved the argument on...to how to make the sports safer...But as fast as these rules are introduced, loopholes are found.
