PKU PKU in a time of Covid This is a worrying time so I will start by highlighting the NSPKU Video on Coronavirus and the statement on their website.
Conference NSPKU 2020 This report covers the Saturday morning session which includes the latest research and legal wrangling on PKU.
PKU Fad Diets & PKU Being able to chose what you eat, or what you avoid, is not an option for anyone on a medically restricted diet.
PKU Blogging Anxiety I have never said that the PKU diet is easy but I do try to avoid negative thinking. It is not easy to be positive about having an inherited metabolic disorder...I don't leap out of bed in the morning and shout “Hurray! I have PKU!”
PKU Eating out with PKU Every now and then there is a request on social media for help when eating out with PKU. Here are some tips and recommendations for eating out in the UK.
Brain Injury Rugby rules, football failures and concussions in sport. The last few years have seen numerous studies showing the damage which contact sports can cause to the brain. This has moved the argument on...to how to make the sports safer...But as fast as these rules are introduced, loopholes are found.
PKU What is PAL? Or PEG-PAL or Pegvaliase or Palynziq...? The four terms refer to different aspects of a single method of treatment for PKU. This is an enzyme replacement therapy which is usually injected. Bear with me while I try untangle it all.
Brain Injury ABI & Gardening There is growing evidence which shows the benefits gardening has on our mental health. Five years ago, a doctor and scientist argued that gardening should be available on the NHS.
PKU PKU friendly recipes to try in October Where the heck did September go? Admittedly I spent most of the month pretending it was still summer. The weather played ball early on, but now the season for soups and oven dishes is now upon us.
PKU Fitness, BMI & PKU BMI is not a personalised reminder of your chocolate and/or beer binges. It lets you know roughly how you are doing.
PKU PKU and heatwave friendly recipes For five days the temperatures are expected to hover around 30 celcius so it is a good time to revisit my handy ‘no-cook’ recipes. There are three on this page, ranging from phe-free, to 2phe per portion.
Brain Injury Pausing the anxiety treadmill. If there ever was a time to be kind to yourself, this is it. Take a breath and realise that one mistake is not a failure. We are usually nicer to everyone else than we are to ourselves.
Brain Injury Brain Injury and exercise The effects of exercise on those recovering from a brain injury can be helpful and encouraging for both body and mind.
Brain Injury Concussion substitutes now allowed in international cricket. In a landmark rule change, cricket teams will be able to replace concussed players during international games. This is exciting news for brain injury awareness, brain injury prevention and for sports fans.
Brain Injury Heatwaves & Acquired Brain Injury (ABI). Some people with ABI will be fine, but for many temperature extremes can make it harder to mange the symptoms and effects of the injury. Headway UK reports that “A brain injury can sometimes cause problems with temperature regulation making it harder for survivors to control their body temperature.”
PKU Tea & Scones My lack of baking prowess is legendary, as is my love for a freshly baked treat.So a few months back I decided to knuckle down and master at least one simple recipe. Every Saturday for a month the kitchen rang to the sound of muttered curses softened by a dusting of flour. But I got there!
PKU Webinar - Healthy eating on a low protein diet Louise kicks things off by saying that “in theory a Low Protein (LP) diet sounds very healthy as it should include a lot of vegetables and fruit.” But her research has found that it can be difficult to eat healthily and watch your weight on a LP diet. Fortunately, she has a few answers.
Conference UKABIF at Parliament Two weeks after Chris Bryant MP led a debate in Parliament on Acquired Brain Injury (ABI) he co-hosted a Lobbying Reception in Speakers House. The aim of the event was to raise awareness of ABI and of the need to improve neuro-rehabilitation facilities.
PKU The Online PKU Community This is PKU Awareness month and International PKU day is on the 28th of June. So this is the perfect time to get a bit more involved with PKU online.
Brain Injury All Party Parliamentary Group (APPG) for Acquired Brain Injury Acquired Brain Injury is in focus at Westminster today as Chris Bryant, MP for the Rhondda, introduces a Debate on a Motion on Acquired Brain Injury.
PKU PKU Awareness Month Challenge Telling someone that you have PKU really can make it easier to stick to the diet; as well as raising awareness of the condition during PKU Awareness month.
About Polly O'Connor What is PKU? “I have inherited a mutated gene meaning my body cannot produce a particular enzyme which breaks down an essential amino acid. ...Ultimately too much protein in my food can lead to brain damage.”
PKU New Waitrose Vegan Range It seems there is a new Vegan range at Waitrose and I picked up two of them for a weekend taste-a-thon.
PKU What is GMP? All of the above is sounding pretty damned good, for most people it’s enough that a new supplement tastes better. But it’s looking like there might be even more benefits to using GMP over a synthesised amino acid supplement.
PKU Chocolate Sphere trial: results! With the new chocolate Sphere flavour out from Vitaflo I decided to see if I could fit this into my diet - see here for the first installment. How did I do it and what happened?
